EB Events in Long Beach, New York, and Chicago
Help Fund a Cure for Mikey + Jackson + Charley + so many more
Epidermolysis Bullosa Research Partnership (EBRP) is hosting a series of special fundraising events this Fall aimed at treating and curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth with over 500,000 people around the world impacted.
Upcoming Events
- Saturday, Sept. 23 ERBP is hosting its 7th annual auction ‘Night of Discovery’ fundraiser in Long Beach, CA.
TO PURCHASE TICKETS to NIGHT OF DISCOVERY
- Wednesday, Nov. 8th ERBP is hosting its 8th annual ‘ACTion for Jackson’ fundraiser in New York City.
TO PURCHASE TICKETS to ACTION FOR JACKSON
- Saturday, Nov. 11th ERBP is hosting a ‘Change for Charley’ fundraiser in Chicago.
TO PURCHASE TICKETS to CHANGE FOR CHARLEY
About EB Research Partnership (EBRP)
EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa. EBRP was formed in October 2014 through the merger of Jackson Gabriel Research Foundation and Heal EB. They use groundbreaking venture philanthropy funding models to support leading research institutions such as Stanford University and the University of Minnesota. Jill and Eddie Vedder are founding board members and passionate fundraisers for treatments and cures.
“We are thrilled to be able to support the brilliant work of leading doctors and researchers committed to identifying better treatments and ultimately a cure for this cruel disease. Our close family friends have a son with EB and we want to do everything we can to ensure a better quality of life for him and all children living with those types of genetic disorders." - Jill & Eddie
Even if you can't attend one of the Fall events, you can make a donation to EBRP in line with your budget.
#CauseTheWave #HealEB!
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Eddie Vedder
The EB Research Partnership (EBRP) will be holding special fundraising events this Fall aimed to treat and cure Epidermolysis Bullosa (EB). Jill and Eddie Vedder, founding board members of EBRP, are thrilled to be supporting research to help find a cure. To find more info or make a donation, please visit: bit.ly/EV_EBEvents