This was an incredibly emotional night. Being in the room with so many strong and courageous people was amazing and impactful. Seeing Ed and Jill’s commitment was beyond evident. They are so passionate about conquering this disease. They are both amazing human beings. The courage of these kids is most remarkable. The world today fills the news with so much shit, that this night was a much needed reminder that there are so many extraordinary people doing great things to help others.
It sounds crazy to say but as great as Ed was, and he was his usual brilliant self, his performance actually took a back seat to the film we had just seen I can only assume that that’s how he would want it to be… I am lucky to have been there with my wife and two kids who are 25 &23.. We hugged them a lot last night. once again came to the realization that we like so many here on this forum are so lucky in so many ways.. Much Love LS
Tribeca 2025- "Matter of Time" Documentary Conversation
"Matter of Time" where we speak with CEO of EB Research Michael Hund, as well as Doctor Jean Tang, and Documentary Subjects Kate and Rowan Holler about the incredibly impactful and emotional documentary piece showcasing the lives of people who experience the effects of EB, which stands for Epidermolysis Bullosa.
Synopsis: MATTER OF TIME is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease.
Fueled by the raw energy of Eddie Vedder’s 2023 solo performances in Seattle and driven by the fierce determination of patients, families, and scientists, MATTER OF TIME captures a rising global effort to cure EB and pave the way for thousands of other rare diseases.
Produced by Door Knocker Media in association with the Vitalogy Foundation, this is more than a concert film. It’s a story of defiance, innovation, and the belief that even the most impossible challenges are only a matter of time.
At the forefront of this fight is EB Research Partnership (EBRP) — a trailblazing force proving that rare disease isn’t just treatable, it’s curable. The mission is bold, their impact is real, and this film is their rallying cry to the world.
With an original score by Broken Social Scene and candid interviews from all sides of the movement, the film is a rallying cry for what’s possible when people come together—with urgency and heart—for something bigger than themselves.
Comments
when do we get to see the movie?
The courage of these kids is most remarkable. The world today fills the news with so much shit, that this night was a much needed reminder that there are so many extraordinary people doing great things to help others.
I can only assume that that’s how he would want it to be…
I am lucky to have been there with my wife and two kids who are 25 &23..
We hugged them a lot last night.
once again came to the realization that we like so many here on this forum are so lucky in so many ways..
Much Love
LS
Thanks!
The EB CEO had some on as well.
I hope we can see the film soon. Ill be ready with tissues
Tribeca 2025- "Matter of Time" Documentary Conversation
Synopsis: MATTER OF TIME is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease.
Fueled by the raw energy of Eddie Vedder’s 2023 solo performances in Seattle and driven by the fierce determination of patients, families, and scientists, MATTER OF TIME captures a rising global effort to cure EB and pave the way for thousands of other rare diseases.
Produced by Door Knocker Media in association with the Vitalogy Foundation, this is more than a concert film. It’s a story of defiance, innovation, and the belief that even the most impossible challenges are only a matter of time.
At the forefront of this fight is EB Research Partnership (EBRP) — a trailblazing force proving that rare disease isn’t just treatable, it’s curable. The mission is bold, their impact is real, and this film is their rallying cry to the world.
With an original score by Broken Social Scene and candid interviews from all sides of the movement, the film is a rallying cry for what’s possible when people come together—with urgency and heart—for something bigger than themselves.