On Sunday we got to hear inspiring stories from our EB Superheroes, Elodie, Solomon, Fazeel, and Deanna, we got to see the life-changing research
being done across the world to heal EB, and we got to be EB Active with
some of our favorite celebrities! Most importantly, we got to raise
awareness for the devastating disease that is EB and we got to raise
funds that will go directly to funding further research.
We are so grateful to all of the incredible and hardworking members of our community that came together to make Venture into Cures 2022
such a success, and a huge thank you to everyone who tuned in! If you
didn't get a chance to catch the show (or you want to rewatch all of
your favorite moments...) you can do so below:
Comments
I was hoping Ed did an acoustic song.
No dice.
On Sunday we got to hear inspiring stories from our EB Superheroes, Elodie, Solomon, Fazeel, and Deanna, we got to see the life-changing research being done across the world to heal EB, and we got to be EB Active with some of our favorite celebrities! Most importantly, we got to raise awareness for the devastating disease that is EB and we got to raise funds that will go directly to funding further research.
We are so grateful to all of the incredible and hardworking members of our community that came together to make Venture into Cures 2022 such a success, and a huge thank you to everyone who tuned in! If you didn't get a chance to catch the show (or you want to rewatch all of your favorite moments...) you can do so below:
Sincerely,
The EBRP Team