Fenway Request - Cancer Battle - Latest Update (HUGE NEWS)
Given2Fly-Fish
Posts: 826
Hi Everyone,
So on April 2nd I was told I had Stage 4
Pancreatic Cancer (so for the whole month my family and I thought that I
had months to live). I found out when I went in to Dana Farber in
early May after 2 second opinions and a biopsy that I have a different kind of Pancreatic Cancer
(Neuroendocrine Pancreatic Cancer - PNET - think Steve Jobs). Still not
great news but I feel like I hit the lottery (treatable but not curable
- at least today!). The difference is years vs. months, so hopefully I
get to watch my boys (19, 18 & 15) turn into men. I am lucky in that with the treatment right now there are minimal side
affects so I can still work, spend quality time with the family and continue to do the things in life I love to do (workout, surf (surfed with Ed a couple of years ago), play lacrosse and
fly-fish). My wife (24 years - met in college) Julie and I will be at Ohana and this will be our first concert together since my diagnosis. I am 53 and have been a fan since '92 and seen PJ 31 times. Julie has been to many of these concerts with me and is a fan by osmosis (as is the rest of the family... 
). Anyway it's been a long road since April for us and hopefully I have a long road ahead of me. As such, I would love to hear Long Road for my wife Julie and I at Ohana.
). Anyway it's been a long road since April for us and hopefully I have a long road ahead of me. As such, I would love to hear Long Road for my wife Julie and I at Ohana.Update - So it's hard to believe it's been 2 1/2 years since my diagnosis. I did chemo for a year and have been getting monthly injections for the past year and a half to keep everything knocked down. I feel great and still working, surfing, playing lacrosse and fly-fishing. We've been able to knock a few items off of the bucket list (saw Orcas in Vancouver 2 years ago, surfed Waikiki this summer and went cage diving with sharks in Hawaii). Julie and I are going to the first Ohana weekend and can't wait!!! As I continue to check items off the list I figured I would give this request another shot...
Update - 9/19/23 - Well I'm officially an outlier as I've outlived the mean average for my diagnosis (4 years). It's been a long 4 1/2 years (12 months of chemo, monthly treatments and 6 months of radiation this past year). I'm extremely grateful that with modern medicine I've tolerated these treatments extremely well. September was my 54th consecutive month surfing in MA since my diagnosis (I even surfed the day after radiation treatment). I've also been able to play lacrosse with my boys which has been awesome (I also got back into coaching lacrosse). I also got my first tattoo (stickman on a surfboard) and went dog-sledding up in ME last winter. Most important; I've been able to be here for some significant milestones - My youngest son graduated from High School, my middle son is a sophomore in college and my oldest got his first real job. There was a time that I didn't think I would see ANY of this...Anyway, Julie and I are going to our 4th Ohana Festival and can't wait!!! Would love to hear Long Road if possible but honestly just psyched for our 4th Ohana Festival and the amazing line-up!!!
Latest Update - 9/7/24 - So after 5 1/2 years surgery recently bacame an option!!! I had the procedure on August 26th (removed part of pancreas, liver and all of my spleen). It was a big procedure and still recovering as I write this; but the decision was a no brainer! Small chance of being cancer free, reset the clock and decade or decades of time. vs. 2-5 years. It really is unbelievable and all of this came about really fast. I will be at 9/15 show with my youngest son Griffin who's first show was in Worcester when he was 9. This will be our 2nd show together and at 20 he has become a big fan of Pearl Jam. He even loves some of the songs for the more serious collectors (like Long Road!!!). Anyway, I'm currently "training" for the 2 Fenway shows by taking 2 walks a day...
. My streak of 64 consecutive months surfing is in jeopardy but I think I might have figured out a way if I get cleared by the Docs. I'll also be at the 9/17 show with Julie. We had to cancel Ohana year due to the surgery but will definitely be there next year. Anyway here's hoping my son Griffin and I get to hear Long Road on 9/15 at Fenway (as our Road just got a hell of a lot longer)!!! There will also be a lot of friends & family at this show so it would be perfect...Last, I'm definitely going to be a hot mess when I hear Alive!
Update - 9/19/23 - Well I'm officially an outlier as I've outlived the mean average for my diagnosis (4 years). It's been a long 4 1/2 years (12 months of chemo, monthly treatments and 6 months of radiation this past year). I'm extremely grateful that with modern medicine I've tolerated these treatments extremely well. September was my 54th consecutive month surfing in MA since my diagnosis (I even surfed the day after radiation treatment). I've also been able to play lacrosse with my boys which has been awesome (I also got back into coaching lacrosse). I also got my first tattoo (stickman on a surfboard) and went dog-sledding up in ME last winter. Most important; I've been able to be here for some significant milestones - My youngest son graduated from High School, my middle son is a sophomore in college and my oldest got his first real job. There was a time that I didn't think I would see ANY of this...Anyway, Julie and I are going to our 4th Ohana Festival and can't wait!!! Would love to hear Long Road if possible but honestly just psyched for our 4th Ohana Festival and the amazing line-up!!!
Latest Update - 9/7/24 - So after 5 1/2 years surgery recently bacame an option!!! I had the procedure on August 26th (removed part of pancreas, liver and all of my spleen). It was a big procedure and still recovering as I write this; but the decision was a no brainer! Small chance of being cancer free, reset the clock and decade or decades of time. vs. 2-5 years. It really is unbelievable and all of this came about really fast. I will be at 9/15 show with my youngest son Griffin who's first show was in Worcester when he was 9. This will be our 2nd show together and at 20 he has become a big fan of Pearl Jam. He even loves some of the songs for the more serious collectors (like Long Road!!!). Anyway, I'm currently "training" for the 2 Fenway shows by taking 2 walks a day...
. My streak of 64 consecutive months surfing is in jeopardy but I think I might have figured out a way if I get cleared by the Docs. I'll also be at the 9/17 show with Julie. We had to cancel Ohana year due to the surgery but will definitely be there next year. Anyway here's hoping my son Griffin and I get to hear Long Road on 9/15 at Fenway (as our Road just got a hell of a lot longer)!!! There will also be a lot of friends & family at this show so it would be perfect...Last, I'm definitely going to be a hot mess when I hear Alive!Thanks for listening and take care of yourselves (and enjoy life!),
Chip O'Brien
Boston, MA
Post edited by Given2Fly-Fish on
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Comments
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Wow, Chip -- so sorry to hear, but love your outlook and love that the diagnosis changed to years. (May we all have "years" - just as many as we can steal away.)Enjoy Ohana!The love he receives is the love that is saved0
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Sorry to hear about that but your positive attitude is inspiring. Would love to read about your surfing session with Ed too one day. Long road is always a great song and I hope you get to enjoy it at Ohana. I hope you have a long smooth road ahead of you. Stay strong!!! Enjoy Ohana fest!Peace,Love and Pearl Jam.0
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F Me In The Brain said:Wow, Chip -- so sorry to hear, but love your outlook and love that the diagnosis changed to years. (May we all have "years" - just as many as we can steal away.)Enjoy Ohana!Thank you I appreciate it and like the "stealing away" comment! I know these type of threads bum people out and that is not my intent. I figured that if I was ever going to make a request now is the time. Just got our wristbands in the mail today and can't wait!0
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Thank you and we will! I don't want to get into too much detail on the surfing session (I don't want to ruin the spot for Ed) but he is exactly how you would expect. I caught a wave and was paddling back out and I looked over and Ed was paddling out right next to me...pearljammr78 said:Sorry to hear about that but your positive attitude is inspiring. Would love to read about your surfing session with Ed too one day. Long road is always a great song and I hope you get to enjoy it at Ohana. I hope you have a long smooth road ahead of you. Stay strong!!! Enjoy Ohana fest!
I said hi and he paddled over and shook my hand and said nice to meet you. As we paddled to the break I thanked him and told him how much the music meant to me in my life and in surfing. He then said let's go catch a wave and we caught the next set (my and EV riding the same wave!). Knowing I was from Boston he asked me about the Sox and we talked Red Sox and Cubs. We surfed for about an hour and talked a bit more as I wanted to give him his space. He gave me a shout out when I was riding on a wave as he was paddling back out over the wave I was on. I could see that he was paddling away from the break and he stopped and asked me my name again and said nice meeting you before he had to leave (which he didn't have to do). To have an organic experience like that and getting to share something that we both love was nothing short of amazing!
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Hey man,
So happy to hear that your diagnosis has changed and love your outlook on the road ahead. I hope you get to hear Long Road and that you and your wife have an awesome time at Ohana!
Cheers,
MattI LOVE MUSIC.
www.cluthelee.com
www.cluthe.com0 -
Good luck... hope you get your song!1996: Randall's Island 2 1998: East Rutherford | MSG 1 & 2 2000: Cincinnati | Columbus | Jones Beach 1, 2, & 3 | Boston 1 | Camden 1 & 2 2003: Philadelphia | Uniondale | MSG 1 & 2 | Holmdel 2005: Atlantic City 1 2006: Camden 1 | East Rutherford 1 & 2 2008: Camden 1 & 2 | MSG 1 & 2 (#25) | Newark (EV) 2009: Philadelphia 1, 2 & 4 2010: Newark | MSG 1 & 2 2011: Toronto 1 2013: Wrigley Field | Brooklyn 2 | Philadelphia 1 & 2 | Baltimore 2015: Central Park 2016: Philadelphia 1 & 2 | MSG 1 & 2 | Fenway Park 2 | MSG (TOTD) 2017: Brooklyn (RnR HOF) 2020: MSG | Asbury Park 2021: Asbury Park 2022: MSG | Camden | Nashville 2024: MSG 1 & 2 (#50) | Philadelphia 1 & 2 | Baltimore 2025: Raleigh0
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What a great story. Sounds like it couldn’t have happened to a cooler guy. Thank you for sharing. Have fun at Ohana. Really hope you get Long Road. And a long and happy life.Given2Fly-Fish said:
Thank you and we will! I don't want to get into too much detail on the surfing session (I don't want to ruin the spot for Ed) but he is exactly how you would expect. I caught a wave and was paddling back out and I looked over and Ed was paddling out right next to me...pearljammr78 said:Sorry to hear about that but your positive attitude is inspiring. Would love to read about your surfing session with Ed too one day. Long road is always a great song and I hope you get to enjoy it at Ohana. I hope you have a long smooth road ahead of you. Stay strong!!! Enjoy Ohana fest! I said hi and he paddled over and shook my hand and said nice to meet you. As we paddled to the break I thanked him and told him how much the music meant to me in my life and in surfing. He then said let's go catch a wave and we caught the next set (my and EV riding the same wave!). Knowing I was from Boston he asked me about the Sox and we talked Red Sox and Cubs. We surfed for about an hour and talked a bit more as I wanted to give him his space. He gave me a shout out when I was riding on a wave as he was paddling back out over the wave I was on. I could see that he was paddling away from the break and he stopped and asked me my name again and said nice meeting you before he had to leave (which he didn't have to do). To have an organic experience like that and getting to share something that we both love was nothing short of amazing!Peace,Love and Pearl Jam.0 -
Thinking of you, Chip and your family during the Ohana festival.0
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Thank you very much!YourDirtisMyfood said:Thinking of you, Chip and your family during the Ohana festival.
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mfc2006 said:Hey man,
So happy to hear that your diagnosis has changed and love your outlook on the road ahead. I hope you get to hear Long Road and that you and your wife have an awesome time at Ohana!
Cheers,
MattHi Matt - Thanks and cheers back to you! Chip0 -
Hey Chip,
Thanks for sharing your story (and the Ed surfing adventure too
). Your positive and courageous outlook is inspiring. May your years multiply, and hope you and Julie get to hear Long Road at Ohana!
Long may you run,
David
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Wishing you the best Chip and that you get this request! Enjoy the trip!!!!
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Hope you get your request! I’ll be there too, maybe I’ll see you (in the front fingers crossed). Love your positive attitude! A cure is coming, and treatment has come a long way. I have a friend who is living with stage 4 colon cancer, she has a IG that is really inspiring @tenacious_jess if you’d like to follow along in her adventures living with cancer. All the best to you and your fam. And again i hope you get your request!!Post edited by jacquelynca onIG and twitter - @jacquelynincali
1994 - Bridge School Benefit, Shoreline Mountain View CA
*** 1995 - 2015 High School, College, Broke, Having Kids***
2016 - Temple of the Dog, Bill Graham Civic Center Auditorium, San Francisco CA
2017 - Eddie Vedder, Bourbon and Beyond, Louisville KY
2018 - The Home Shows, Show 2, Seattle WA
2019 - Eddie Vedder, Ohana Fest, Dana Point CA
2020- Oakland Nights 1 and 2
2020 - Ohana Fest
2021 - Ohana Fest
2022 - Oakland 1 and 2
"Watch out for music. It should come with a health warning. It can be dangerous. It can make you feel so alive, so connected to the people around you, and connected to what you really are inside. And it can make you think that the world should, and could, be a much better place. And just occasionally, it can make you very, very happy." -Peter Gabriel0 -
HI Jacquelyn - Yes I would like to get up front as well. How early do you think we should get there to get close? Thanks for the share on Jess and I just started following (@given2flyfish). Take care and hopefully I'll see you up front!jacquelynca said:Hope you get your request! I’ll be there too, maybe I’ll see you (in the front fingers crossed). Love your positive attitude! A cure is coming, and treatment has come a long way. I have a friend who is living with stage 4 colon cancer, she has a IG that is really inspiring @tenacious_jess if you’d like to follow along in her adventures living with cancer. All the best to you and your fam. And again i hope you get your request!!0 -
I just followed you :-) I told my husband on Saturday we need to get there as soon as the festival gates open and i plan on planting myself in the front all day. My only concerns are bathroom but I’ll try and take care of all that earlier on, drink minimal water and just eat beef jerky to curb my appetite haha! I’m also a little concerned about when mudhoney goes on...i have to see them again so hopefully they’re on the same stage and hopefully there’s not too much moshing in the front bc i can’t handle that. If we find each other in the front we should all save each others spots if someone has to go to the bathroom, get food, etc.Given2Fly-Fish said:
HI Jacquelyn - Yes I would like to get up front as well. How early do you think we should get there to get close? Thanks for the share on Jess and I just started following (@given2flyfish). Take care and hopefully I'll see you up front!jacquelynca said:Hope you get your request! I’ll be there too, maybe I’ll see you (in the front fingers crossed). Love your positive attitude! A cure is coming, and treatment has come a long way. I have a friend who is living with stage 4 colon cancer, she has a IG that is really inspiring @tenacious_jess if you’d like to follow along in her adventures living with cancer. All the best to you and your fam. And again i hope you get your request!!IG and twitter - @jacquelynincali
1994 - Bridge School Benefit, Shoreline Mountain View CA
*** 1995 - 2015 High School, College, Broke, Having Kids***
2016 - Temple of the Dog, Bill Graham Civic Center Auditorium, San Francisco CA
2017 - Eddie Vedder, Bourbon and Beyond, Louisville KY
2018 - The Home Shows, Show 2, Seattle WA
2019 - Eddie Vedder, Ohana Fest, Dana Point CA
2020- Oakland Nights 1 and 2
2020 - Ohana Fest
2021 - Ohana Fest
2022 - Oakland 1 and 2
"Watch out for music. It should come with a health warning. It can be dangerous. It can make you feel so alive, so connected to the people around you, and connected to what you really are inside. And it can make you think that the world should, and could, be a much better place. And just occasionally, it can make you very, very happy." -Peter Gabriel0 -
IG and twitter - @jacquelynincali
1994 - Bridge School Benefit, Shoreline Mountain View CA
*** 1995 - 2015 High School, College, Broke, Having Kids***
2016 - Temple of the Dog, Bill Graham Civic Center Auditorium, San Francisco CA
2017 - Eddie Vedder, Bourbon and Beyond, Louisville KY
2018 - The Home Shows, Show 2, Seattle WA
2019 - Eddie Vedder, Ohana Fest, Dana Point CA
2020- Oakland Nights 1 and 2
2020 - Ohana Fest
2021 - Ohana Fest
2022 - Oakland 1 and 2
"Watch out for music. It should come with a health warning. It can be dangerous. It can make you feel so alive, so connected to the people around you, and connected to what you really are inside. And it can make you think that the world should, and could, be a much better place. And just occasionally, it can make you very, very happy." -Peter Gabriel0 -
Amazing version and thanks for sharing!!! I love the choir it adds a whole new dynamic to the song. I am definitely up for grabbing spaces up front...jacquelynca said: 0 -
I know so good, made me tear up a bit. Ok let’s meet up in front, we’ll get in touch closer to the event!Given2Fly-Fish said:
Amazing version and thanks for sharing!!! I love the choir it adds a whole new dynamic to the song. I am definitely up for grabbing spaces up front...jacquelynca said:IG and twitter - @jacquelynincali
1994 - Bridge School Benefit, Shoreline Mountain View CA
*** 1995 - 2015 High School, College, Broke, Having Kids***
2016 - Temple of the Dog, Bill Graham Civic Center Auditorium, San Francisco CA
2017 - Eddie Vedder, Bourbon and Beyond, Louisville KY
2018 - The Home Shows, Show 2, Seattle WA
2019 - Eddie Vedder, Ohana Fest, Dana Point CA
2020- Oakland Nights 1 and 2
2020 - Ohana Fest
2021 - Ohana Fest
2022 - Oakland 1 and 2
"Watch out for music. It should come with a health warning. It can be dangerous. It can make you feel so alive, so connected to the people around you, and connected to what you really are inside. And it can make you think that the world should, and could, be a much better place. And just occasionally, it can make you very, very happy." -Peter Gabriel0 -
Sounds like a plan and hope everyone had a great weekend!0
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What a wonderful way to celebrate life. Best thoughts to you and Julie.0
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