Crohn's Disease

Acidophilus Lactobacilli dietary supplement (Acidophilus is the culture in yogurt). I buy this at Costco pharmacy OTC for $3.85 for a bottle of 100 capsules.

When first taking this supplement, use 2 caps daily.. One in the morning before eating breakfast and one at night, either around dinner time or before bed... whatever is convenient, especially if you take other medications, you can just take the Acidophilus with those. Do this for the first 50 days.. I say this 'cause I buy them in bottles of 100 and this is the easiest way to remember when to change your dosing schedule. After the first 50 days, begin only taking one per day in the morning. This is sufficient for me, but a person with a more advanced disease state may want to continue the 2 per day dosing schedule, or even take greater doses. That would be a personal choice based on response. I would recommend lowering to the one cap each day after the first couple of months just to see if that is enough to maintain control (no need to spend money if you don't have to).
Acidophilus is a probiotic, as opposed to an anti-biotic. Anti-biotics are basically a poison to the bad things in your system to erradicate them (and a poison to you), where probiotics work in a healthful way within your body to improve natural body function to prevent or eliminate disease.

Now read why I mention this...

I would like to make a suggestion about taking an inexpensive supplement called Acidophilus that may help some of you almost completely overcome the syptoms of Crohns, IBS, IBD.. It works for me, I swear! Also, I work with alot of these patients in varying disease states, some with quite stable conditions to others that have had to go as far as one or more bowel resections.. The patients that have tried this supplement have all reported a significant improvement from symptoms, especially the diarrhea and the cramping, and the urgency to void immediately after eating.. In fact, my own schedule is quite normal these days, which is a far cry from the days of old which began at 15 years old for me. This is not something that causes an overnight relief, but there is nothing harmful about it, so to add it to your daily regimen of medications until it can build in your body and become effective should not be an issue for those seeking relief. Please see the beginning of my post on how I take it and try to follow that plan if you wish to give this a shot. FYI, I take nothing else at this time (and have not for almost 2 years) due to the relief I have achieved with Acidophilus. I originally took Acidophilus as an experiment to see if it would lower my slightly high cholesterol and help to stabilize my blood sugar (type II diabetes). While I did not see any significant results from either the cholesterol or glucose management, I noticed that my intestinal health had tremendously improved. I was unsure if this was just a period of so called "remission" or if was in fact a benefit of the acidophilus, I stopped taking it and this was the result.. I continued to be quite stable during the next month or two without the supplement.. Then, the problem began to resurface and continued to worsen. I remained off the supplement for nearly a year. My symtoms were all back in full force with no relief in sight. I began the supplement again, taking them as I had originally, which is described above. The rest is basically history. The problem once again literally went away and after nearly 2 years of being on it again, I have maintained excellent control and stability. I take my Acidophilus without fail each morning.

If anyone decides to give this a shot, please let me know how it went for you. I work in a doctors office and deal with Rx drugs all day. You would not believe the amount of drugs and the cost to the patient to deal with one problem like Crohn's or IBS, let alone when the patient suffers from multiple disease types. I'd be thrilled if even a handful of people could thumb their nose at these huge drug companies and get better, healthier relief from a $3.85 supplement!

-peace

Thats a good read Zanne, thanks for sharing that. I'm sure i've read about the probiotic theory in a few articles i've come by, but it's good to hear first hand success.

Krohn

Zanne wrote:

Acidophilus Lactobacilli dietary supplement (Acidophilus is the culture in yogurt). I buy this at Costco pharmacy OTC for $3.85 for a bottle of 100 capsules.

When first taking this supplement, use 2 caps daily.. One in the morning before eating breakfast and one at night, either around dinner time or before bed... whatever is convenient, especially if you take other medications, you can just take the Acidophilus with those. Do this for the first 50 days.. I say this 'cause I buy them in bottles of 100 and this is the easiest way to remember when to change your dosing schedule. After the first 50 days, begin only taking one per day in the morning. This is sufficient for me, but a person with a more advanced disease state may want to continue the 2 per day dosing schedule, or even take greater doses. That would be a personal choice based on response. I would recommend lowering to the one cap each day after the first couple of months just to see if that is enough to maintain control (no need to spend money if you don't have to).
Acidophilus is a probiotic, as opposed to an anti-biotic. Anti-biotics are basically a poison to the bad things in your system to erradicate them (and a poison to you), where probiotics work in a healthful way within your body to improve natural body function to prevent or eliminate disease.

Now read why I mention this...

I would like to make a suggestion about taking an inexpensive supplement called Acidophilus that may help some of you almost completely overcome the syptoms of Crohns, IBS, IBD.. It works for me, I swear! Also, I work with alot of these patients in varying disease states, some with quite stable conditions to others that have had to go as far as one or more bowel resections.. The patients that have tried this supplement have all reported a significant improvement from symptoms, especially the diarrhea and the cramping, and the urgency to void immediately after eating.. In fact, my own schedule is quite normal these days, which is a far cry from the days of old which began at 15 years old for me. This is not something that causes an overnight relief, but there is nothing harmful about it, so to add it to your daily regimen of medications until it can build in your body and become effective should not be an issue for those seeking relief. Please see the beginning of my post on how I take it and try to follow that plan if you wish to give this a shot. FYI, I take nothing else at this time (and have not for almost 2 years) due to the relief I have achieved with Acidophilus. I originally took Acidophilus as an experiment to see if it would lower my slightly high cholesterol and help to stabilize my blood sugar (type II diabetes). While I did not see any significant results from either the cholesterol or glucose management, I noticed that my intestinal health had tremendously improved. I was unsure if this was just a period of so called "remission" or if was in fact a benefit of the acidophilus, I stopped taking it and this was the result.. I continued to be quite stable during the next month or two without the supplement.. Then, the problem began to resurface and continued to worsen. I remained off the supplement for nearly a year. My symtoms were all back in full force with no relief in sight. I began the supplement again, taking them as I had originally, which is described above. The rest is basically history. The problem once again literally went away and after nearly 2 years of being on it again, I have maintained excellent control and stability. I take my Acidophilus without fail each morning.

If anyone decides to give this a shot, please let me know how it went for you. I work in a doctors office and deal with Rx drugs all day. You would not believe the amount of drugs and the cost to the patient to deal with one problem like Crohn's or IBS, let alone when the patient suffers from multiple disease types. I'd be thrilled if even a handful of people could thumb their nose at these huge drug companies and get better, healthier relief from a $3.85 supplement!

-peace

My sister has Crohns, my dad did too, and I was just wondering if anyone had tried that new Activia yogurt and if it has made any difference? I keep wanting to suggest it to her but I don't see her often.
Mindi

thanks for the update.

*in prayers, and hopes that all will be well*

@-)----

I never thought I would use that card, but I did...and it came in handy.

awesome story!!!:D Inspiration for others who have C+C.

((hugs))

lovebuzz wrote:

.

and I only knew what Crohn's was because of the connection with Mike M... so I want to thank everyone for raising awareness for the disease!

I am so happy that there is more awareness about Crohns.
My sister was rushed to the er on a Friday night when she was 19 (she is 42 now) and they thought first it was appendicitis. Then they kept accussing her of being pregnant and wouldn't listen when she kept telling them there was no way. They had her in tears saying that she was lying, she was pregnant and now the baby would have problems since she had had some xrays.
Anyway they finally made the connection when they contacted my dad's Dr, my dad had crohns too. And my sister had emergency surgery on a friday night to remove a section of her intestines. She seriously almost died, she had a hole in the section they removed and could have gone into septic shock at any minute. If any of you remember the little girl in Poltergeist died of septic shock.
Goood luck with your testing!!
Mindi

/me waves at PBM ~~~

How are ya? So glad I got to meet you. Thanks for your help with everything.

-peace

PissBottleMan wrote:

All is well...thank you for everything in Chicago...your shirts were a hit! Thanks for the pictures too...the folks that took advantage of that really seemed to like it.

PBM

I wish I would have been the one that took the pictures that day instead of just printing them, but it was too hard to run around taking pics when I was trying to transfer the files and do the prints. My son needs a little more experience with my cameras. He had never been allowed to touch them before that day *laugh*
Take a look at MasterModeler's site for some pics I took at Chicago night one and GR. Haven't got my Chicago night 2 pics up yet. http://www.pearljamstories.com/pearljamstories/

*hugs*

-peace

PissBottleMan wrote:

lovebuzz,

Thanks for sharing your story...I'm saddened to hear of all the problems you faced throughout the way...I had similar problems. I just didnt' know what the problem was until I sought out a gastro doctor.

I would advise you to change your appointment. After you drink the Fleet, you will be making several trips to the bathroom...it's not that bad, but it will you will be better served at home.

That's just my suggestion.

Also, you don't have to just drink Fleet anymore...my doctor prescribes pills that do essentially the same thing. Fleet doesn't taste that great, so the pills are a big help.

PBM

PBM - Thanks for the support. So, I went through with it and went to the show anyway. I work near Providence RI and my wife works in Boston, so I left work around 4... I ended up spending an hour at home unable to leave (for obvious reasons), and eventually forced myself out the door because I refused to miss the show... and ended up right in to rush hour traffic. It took me about 1hr 45min to get to my wifes office... WORST time of my life! I started the second bottle about two songs into PJ's set, but the second time wasn't nearly as bad. It was totally worth the suffering though, 'cause the show was simply amazing!

Anyway, I had my colonoscopy yesterday... weirdest thing ever. I've gone under for a sig flex colonoscopy and endoscopy and they knocked me completely out. This time, I was partially concious for some of the procedure, to the point where I vaguely remember watching the video screen of my colonoscopy... it was surreal.

Anyway, my question is this: The doc took some biopsies and removed a polyp... but didn't come to any conclusions whether or not I have Crohn's. Is this typical? I thought they should be able to see scar tissue or sores or something on my intestinal walls that would immediately tell them if I've got it or not? I wasn't at all with it when the procedure was over, so I have no idea what (if anything) my doctor said to me. How long does it take to get the biopsy results back?

Sorry, I'm full of more questions now than before I went in...