UPDATE **Dad Diagnosed with ALS last year** PAYING IT FORWARD RELEASE IN BOSTON FOR DEREK

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Comments

  • NanouNanou Posts: 191
    I hope so too! :)
  • mwplummwplum Posts: 1,501
    Bumping away the Monday blahs
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
    2018 - Seattle x 2, Missoula, Fenway x 2
  • mwplummwplum Posts: 1,501
    to the top!
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
    2018 - Seattle x 2, Missoula, Fenway x 2
  • PJWGIIIPJWGIII Chicago, IL Posts: 806
    Bump again!
    "Red Rover, Red Rover, Mike McCready – Take Over!!" - E.V.

    Ten Club "Ambassador" (recap-writer) - DEEP.pearljam.com
    2018
    : Chicago 2 (Wrigley Field) 8/20 | 20(20)22: St Louis 9/18 | 2023: Chicago 2 (United Center) 9/7, Indianapolis (Deer Creek) 9/10

    EV:
    2018: CURE Benefit Show (Chicago - Navy Pier) 10/15

    RIP: Andy, Kurt, Chris
                                       * * * * * * * * *
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    mwplum said:
    to the top!
    I love you guys!!!
    Thanks so much.


    I'm like a tab
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    My father is a writer.  He's has been to 82 countries and he's is hoping to make it to 100 countries so he can become a member of the century club.

    He started off as a travel writer, but now he writes about other things.  He is an old school guy.

    Born in '45.  His mother was in the first platoon of female Marines.  She was a tough ass lady.  He was a Marine back in the 60's.  Never went to Nam because he joimed the reserves after bootcamp and his unit wasn't called. 

    We watched Full Metal Jacket together once and I asked him if that was an acurate portrait of a drill sergent.  

    His exact words were, "They were scarier in real life because they would choke you, punch you, and throw you down."

    Basically, he explained that drill sergeants back then taught you how to kill people without thinking, and as a 23 year old kid... you thought they were gonna kill you.  And you knew they could if they wanted to.   

    He and I don't agree on politics, which he sometimes writes about.  I don't like his political articles.  

    One thing he does do are ALS updates.  I thought it might be interesting to post them here... so you all could get to know my father from a personal standpoint and understand what its like to have ALS from a first person account.

    I'll go back in the archives and start from the beginning of his diagnosis and his articles.  He's had ALS almost two years.   So, this will be a good way to bump this post while providing some insight and content.

    I would love to hear your insights and comments about whether or not these articles are interesting or informative.

    Thanks again for your support.  


    I'm like a tab
  • mwplummwplum Posts: 1,501
    Very interesting and informative. Thanks for introducing us to your father, his life, his battle, and his passions. He has had quite a life, and hopefully has many more adventures ahead of him! I'm sure he is proud of you.
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
    2018 - Seattle x 2, Missoula, Fenway x 2
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    As I mentioned a few days ago, my father is a writer.  
    He decided shortly after his diagnosis, he would begin documenting his journey with this disease.
    This is the first article he wrote about his condition.  It is from December 3rd, 2016.  

    The Ironies of Baseball, Lou Gehrig and Me 
    Dec. 3, 2016
    -Bob Taylor



    I'm like a tab
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    edited June 2018
    My father's ALS updates are posted weekly on Sundays.   In an effort to let you all get to know my father and to understand what it's like to live with ALS from a first hand account, I will be posting the archives of his articles.  You can click on the headline below to read the article.
    Thank you for your support

    Preparing for the journey of amyotrophic lateral sclerosis

    Dec. 11, 2018
    -Bob Taylor
    I'm like a tab
  • jjflashjjflash Posts: 4,815
    Bump for Bob :smile:
  • mwplummwplum Posts: 1,501
    Bump
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
    2018 - Seattle x 2, Missoula, Fenway x 2
  • mwplummwplum Posts: 1,501
    Just got off work and am listening to Smile...great way to start the weekend
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
    2018 - Seattle x 2, Missoula, Fenway x 2
  • PJWGIIIPJWGIII Chicago, IL Posts: 806
    Back to the top
    "Red Rover, Red Rover, Mike McCready – Take Over!!" - E.V.

    Ten Club "Ambassador" (recap-writer) - DEEP.pearljam.com
    2018
    : Chicago 2 (Wrigley Field) 8/20 | 20(20)22: St Louis 9/18 | 2023: Chicago 2 (United Center) 9/7, Indianapolis (Deer Creek) 9/10

    EV:
    2018: CURE Benefit Show (Chicago - Navy Pier) 10/15

    RIP: Andy, Kurt, Chris
                                       * * * * * * * * *
  • drakeheuer14drakeheuer14 Posts: 4,368
    My dad loves Smile and has mentioned multiple times that he would like to see it live. Specifically as the closer to a set. 

    I really hope you get it! 
    Pittsburgh 2013
    Cincinnati 2014
    Greenville 2016
    (Raleigh 2016)
    Columbia 2016
  • mwplummwplum Posts: 1,501
    To the top!
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
    2018 - Seattle x 2, Missoula, Fenway x 2
  • mwplummwplum Posts: 1,501
    They broke out Smile to open the second encore tonight in Italy! 
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
    2018 - Seattle x 2, Missoula, Fenway x 2
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    mwplum said:
    They broke out Smile to open the second encore tonight in Italy! 
    They're rehearsing for Wrigley.    ;)

    I'm like a tab
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    As I have said and will continue to say, THANK YOU for all the support and bumps and kindness.  Linked below is the third installment of my father's ongoing ALS UPDATE articles that he posts each and every Sunday.   This one is from Christmas 2016. 

    Christmas is a season of healing, even with ALS

    I'm like a tab
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    According to the ALS Association, approximately 6,000 people in the U.S. are diagnosed with ALS each year, which averages to about 15 new cases each day.  
    If any of you know of someone who has been diagnosed with ALS recently, I am MORE than happy to help in any way I possibly can.  The initial diagnosis is very hard to deal with, but the community of support that surrounds you is incredible.   

    My father writes a weekly article about his journey with ALS.  This is one of his first entries from his archives. 

    The art of living with ALS: Socks and other new challenges


    I'm like a tab
  • PJWGIIIPJWGIII Chicago, IL Posts: 806
    Bump!
    "Red Rover, Red Rover, Mike McCready – Take Over!!" - E.V.

    Ten Club "Ambassador" (recap-writer) - DEEP.pearljam.com
    2018
    : Chicago 2 (Wrigley Field) 8/20 | 20(20)22: St Louis 9/18 | 2023: Chicago 2 (United Center) 9/7, Indianapolis (Deer Creek) 9/10

    EV:
    2018: CURE Benefit Show (Chicago - Navy Pier) 10/15

    RIP: Andy, Kurt, Chris
                                       * * * * * * * * *
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    edited June 2018
    I mentioned that one of the reasons I want to hear Smile is because it's just one of those rare songs in the Pearl Jam catalogue that feature's harmonica.  Many, many, many moons ago... when I was young and foolish and thought the world revolved around me, I taught myself how to play harmonica so I could jump on stage and make an ass of myself. 

    Luckily, I had some very, very, very good friends who let me fall on my face until I could actually play.   This isa live recording of The Fullgrown Band from the Sylvia Theatre in York, SC.  June 4th, 2004.    Angie Rikard, Matt Hatfield and Drew Taylor

    Click below for some audio entertainment
    The Fullgrown Band
    Warehouse Blues feat. Drew Taylor
    Live at The Sylvia Theatre 
    York, SC 
    June 4th, 2004
    Post edited by BlackCircle on
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  • PJWGIIIPJWGIII Chicago, IL Posts: 806
    Bump!
    "Red Rover, Red Rover, Mike McCready – Take Over!!" - E.V.

    Ten Club "Ambassador" (recap-writer) - DEEP.pearljam.com
    2018
    : Chicago 2 (Wrigley Field) 8/20 | 20(20)22: St Louis 9/18 | 2023: Chicago 2 (United Center) 9/7, Indianapolis (Deer Creek) 9/10

    EV:
    2018: CURE Benefit Show (Chicago - Navy Pier) 10/15

    RIP: Andy, Kurt, Chris
                                       * * * * * * * * *
  • Abe FromanAbe Froman Posts: 5,031
    Bump. Smile at Wrigley 
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    edited July 2018
    Bump. Smile at Wrigley 
    Thanks Sausage King!

    Here is one of my father's ALS updates from Jan 8th, 2016:  CLICK LINK BELOW to read about life with ALS from a first hand account

    After ALS diagnosis, Social Security says “pound sand”


    I'm like a tab
  • PJWGIIIPJWGIII Chicago, IL Posts: 806
    Another bump!
    "Red Rover, Red Rover, Mike McCready – Take Over!!" - E.V.

    Ten Club "Ambassador" (recap-writer) - DEEP.pearljam.com
    2018
    : Chicago 2 (Wrigley Field) 8/20 | 20(20)22: St Louis 9/18 | 2023: Chicago 2 (United Center) 9/7, Indianapolis (Deer Creek) 9/10

    EV:
    2018: CURE Benefit Show (Chicago - Navy Pier) 10/15

    RIP: Andy, Kurt, Chris
                                       * * * * * * * * *
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    edited July 2018
    My kids playing harp to 'Smile'

    [yt]https://youtu.be/sjmmImfH2Ec[/yt]
    Post edited by BlackCircle on
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  • PJWGIIIPJWGIII Chicago, IL Posts: 806
    My kids playing harp to 'Smile'

    [yt]https://youtu.be/sjmmImfH2Ec[/yt]
    And they should definitely be invited on stage to recreate that vid when they play it at Wrigley!
    "Red Rover, Red Rover, Mike McCready – Take Over!!" - E.V.

    Ten Club "Ambassador" (recap-writer) - DEEP.pearljam.com
    2018
    : Chicago 2 (Wrigley Field) 8/20 | 20(20)22: St Louis 9/18 | 2023: Chicago 2 (United Center) 9/7, Indianapolis (Deer Creek) 9/10

    EV:
    2018: CURE Benefit Show (Chicago - Navy Pier) 10/15

    RIP: Andy, Kurt, Chris
                                       * * * * * * * * *
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    edited July 2018
    You know... after the Chicago show .. if they play Smile, this thread will have contributed (possibly) to that song being played.

    If they don't play it, that's perfectly fine and understandable. Honestly, what are the chances?

    I think the thing i will miss the most is the support you have shown for me and my dad from those of you who continue to bump this and wish my dad luck.

    So thanks, in advance whether played or not, I got to chat with some really awesome people by private message and i got to send them my Dad's baseball card.

    Which is really cool to think about. 


    Post edited by BlackCircle on
    I'm like a tab
  • BlackCircleBlackCircle Charlotte, NC Posts: 371
    PJWGIII said:
    My kids playing harp to 'Smile'

    [yt]https://youtu.be/sjmmImfH2Ec[/yt]
    And they should definitely be invited on stage to recreate that vid when they play it at Wrigley!
    Hahaha... 

    The Boss would totally freeze and Livi-Boogie wouldn't make it out there!!!!  

    I should make the video of William explaining that Arms Aloft is a Joe Strummer song and he was the lead singer for The Clash...  Arms Aloft is his favorite song, but I told him, it wasn't REALLY a Pearl Jam song. 

    He was okay with it.

    Mike McCready is his favorite.   We "Play" Pearl Jam after dinner.  I'm usually Stone or Eddie.  My wife is always Matt and Livi is Jeff.  When my dad is here, William makes my dad be Boom. 
     
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  • PapPap Aspra Spitia, Greece Posts: 28,122
    Athens 2006 / Milton Keynes 2014 / London 1&2 2022 / Seattle 1 2024 / Dublin 2024 / Manchester 2024 / London 2024
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