HUGE PEARL JAM LIVE EXPERIENCE GIVE-AWAY FOR A GREAT CAUSE!!!

DR108002DR108002 Posts: 26
We are giving away:
  • Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
  • $2,000 cash to cover your travel expenses for your weekend in Chicago;
  • Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
  • Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.
Please read why...


We Believe in Miracles.  A Cure for EB is within reach with your help.  Donating makes you eligible for great prizes! 

Click on link to Donate: 
http://www.crowdrise.com/BelieveInMiracles


The Cause

Young friends Noah Keeley and Tyler & Sammy Rippole are once again on a mission to help bring healing and hope for kids with Epidermolysis Bullosa (EB), a group of devastating and life threatening genetic skin disorders that affect children from birth.  100% of the money raised through this raffle will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and curing EB.  EBRP is dedicated to finding a cure to this debilitating disease that affects an estimated 30,000 individuals in the U.S. 

The boys chose to raise money for EB because the intensity of the condition and its impact on kids just like them deeply moves their hearts.   Over the last five years, Noah, Tyler, and Sammy have personally met many young kids who are battling with EB every day.  They are truly inspired by their courage, strength, and perseverance. 

Today, there is no cure for EB.  Please watch this emotional video: http://www.crowdrise.com/BelieveInMiracles to get a sense of the intensity of EB and the impact it has on families that are affected by it.   A cure for EB is within reach, and clinical studies are being conducted at several prestigious research programs including Stanford, Columbia, and Tufts.  The only things standing in the way of curing EB for this generation of young children are money and time.  You can make a difference!
 

The Prize

Your donations will enter you into a raffle to win exceptional prizes, especially for fans of music and baseball, two of the boys’ passions. 

Every $25 you donate will enter you into the raffle.  ($100 counts as four entries, $500 counts as 20 entries, and $1,000 counts as 40 entries!)

The donated prizes include:
  • Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
  • $2,000 cash to cover your travel expenses for your weekend in Chicago;
  • Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
  • Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.

All you have to do is donate!  The contest ends opens today at 2PM EST and closes on July 31st.

We Believe in Miracles.  With your help, we can cure EB once and for all.  Thank you for joining us!!!!

With love,

Noah, Tyler, and Sammy

100% of the proceeds will benefit EB Research Partnership, however neither EB Research Partnership or Pearl Jam are conducting the campaign. This is a "kid-run" campaign.  

Lukin35

Comments

  • ST66483ST66483 Posts: 194
    This is awesome - good on everyone involved for pulling this together. Hope it raises lots of money for the cause!
  • DR108002DR108002 Posts: 26
    Thank you for the kind words of support, fellow fan! They are greatly appreciated.
    Lukin35
  • mwplummwplum Posts: 1,109
    Really great work you're doing! My wife and I were blown away in Quebec City seeing Noah just absolutely shred on Sad! Great to see him, Sammy, Tyler, and their families making such a meaningful difference. Much love to Casey, Patterson, Sebastian, Mikey, Jackson, and everyone else battling EB on a daily basis. I'm going over to the crowd rise site now to donate. I don't have a lot of money, but I'd prefer to spend a night at home this weekend, knowing that the money I saved by doing so is going to a better place. I'd encourage everyone else here to spread the word to friends and family. Not out of a desire to win prizes, but rather out of hope to make a difference in these children's lives.

    Much love and respect from me and my family,
    Matt, Natasha, and (11 month old) Eddie Plummer
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
  • DR108002DR108002 Posts: 26
    This is the nicest message ever! Thank you for generously donating. You’ve made a big difference, and your note touched us all. Please let us reciprocate if you will share a cause you and your family support.  All our love to you, Matt, and to Natasha and Eddie (great name!!)
    Lukin35
  • DR108002DR108002 Posts: 26
    Noah, Tyler, and Sammy have a lyrical message encouraging you to help their friends with EB

    Lukin35
  • DR108002DR108002 Posts: 26
    Meet Joe M.  He won this same raffle in 2016 and had this to say:
    "EB is genetic disorder that affects 1 out of 50,000 births each year.  While this may not seem like many, it is something that can be very painful for those with EB & could lead lead to early death. Through Tyler, Sammy, and Noah’s efforts, they were able to raise money that went towards the search for a cure. They were able to do this by following the lead of their favorite band, Pearl Jam. Just wanted to take a minute to encourage you to make a donation to this cause.  Who knows,  you may end up at Wrigley like I did in 2016. Keep the wave rolling!"

    Lukin35
  • RunIntoTheRainRunIntoTheRain TexasPosts: 521
    DR108002 said:
    Noah, Tyler, and Sammy have a lyrical message encouraging you to help their friends with EB

    Great video!
    Love that you all are getting involved in giving back at a young age. Plus you have great taste in music.
    Good on ya!!
  • DR108002DR108002 Posts: 26
    The boys send their sincere thanks for your support, RunIntoTheRain!  
    Lukin35
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