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EB Events in Long Beach, New York, and Chicago

demetriosdemetrios Canada Posts: 87,736
edited September 2017 in The Porch


Help Fund a Cure for Mikey + Jackson + Charley + so many more

News September 21 2017

Epidermolysis Bullosa Research Partnership (EBRP) is hosting a series of special fundraising events this Fall aimed at treating and curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth with over 500,000 people around the world impacted.

Upcoming Events

TO PURCHASE TICKETS to NIGHT OF DISCOVERY

TO PURCHASE TICKETS to ACTION FOR JACKSON

TO PURCHASE TICKETS to CHANGE FOR CHARLEY

About EB Research Partnership (EBRP)

EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa. EBRP was formed in October 2014 through the merger of Jackson Gabriel Research Foundation and Heal EB.  They use groundbreaking venture philanthropy funding models to support leading research institutions such as Stanford University and the University of Minnesota. Jill and Eddie Vedder are founding board members and passionate fundraisers for treatments and cures.

“We are thrilled to be able to support the brilliant work of leading doctors and researchers committed to identifying better treatments and ultimately a cure for this cruel disease. Our close family friends have a son with EB and we want to do everything we can to ensure a better quality of life for him and all children living with those types of genetic disorders."  - Jill & Eddie

Even if you can't attend one of the Fall events, you can make a donation to EBRP in line with your budget.

#CauseTheWave #HealEB!

 https://www.youtube.com/watch?v=QSJvD6msRoo




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